I refused to let cystic fibrosis define my limits, using it instead as fuel to embrace life’s challenges and inspire others. Through endurance sports, public speaking, and coaching, I encourage people ...

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...

Going to college comes with many changes, and for students with cystic fibrosis, there are additional unique challenges like managing medications and health concerns. While adapting to this transition ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

The Michigan Chapter of the Cystic Fibrosis Foundation welcomes you! Our Chapter covers all of Michigan and Northwest Ohio, including Toledo, Perrysburg, Maumee, and Findlay areas. Volunteers are the ...

The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...

The cystic fibrosis transmembrane conductance regulator (CFTR) protein helps to maintain the balance of salt and water on many surfaces in the body, such as the surface of the lung. The CFTR protein ...

The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of ...